Two-year-old Charlie White, of Fairfield, will be honored by the American Liver Foundation at the fourth annual Liver Life Walk of Fairfield County as the LIVEr Champion. The Liver Life Walk will take place Sept. 29 at Commons Park, Harbor Point in Stamford.
"A LIVEr Champion is a courageous and inspiring individual that is facing or has faced a battle with liver disease. Charlie is a shining example of an energetic, fun-loving and brave child, despite the disease she has currently overcome," Kristin Link, event manager, said in a press release.
Charlie was diagnosed with Maple Syrup Urine Disease a few days after birth. MSUD is an inherited disorder in which the body is unable to process certain protein building blocks properly.
"Charlie was born seemingly perfect. Within a few days, her health began to mysteriously deteriorate," Diana White, Charlie's mother, said in the statement.
The infant spent more than a month in the hospital on a ventilator, with a collapsed lung, brain swelling and feeding tubes.
On June 12, 2012, Charlie received 25 percent of her mother's liver in a liver transplant procedure and was home from the hospital in eight days. Charlie is now able to eat without restrictions, loves to play, and has just begun to walk, Link said.
Charlie and her family will be walking in the Liver Life Walk. Proceeds from the 2013 Liver Life Walk will support the Connecticut Division of the American Liver Foundation's mission for education, support and research for the prevention, treatment and cure of liver disease and to create awareness of the importance of organ donation.
Registration for the walk will begin at 9 a.m., with entertainment starting at 10. The 5K walk will begin at 11 a.m., followed by a free lunch and live music for all participants.
To register as an individual or team, visit www.liverfoundation.org/walk. Volunteers to help with the set-up, registration and clean-up can also register through the website. For more information about liver disease or the Liver Life Walk, call the Connecticut Division of the American Liver Foundation at 203-234-2022 or e-mail email@example.com.